RLS Worsens Despite Natural Remedies and Exercise




I started writing this at 4:15 a.m. this morning - not because I like to get up hours before most normal people, but because my legs are suffering from RLS jolts every few seconds.

The search for the right pillI've tried Magnesium pills, which may have helped temporarily (though I now believe that was more mental than actually helpful). And I've tried exercise, which in some cases has actually made it worse - such as after a very hard workout.

I've tried Sinemet and Requip, with much better results from Requip. However, I'm now at the point where even Requip is failing me and I'm experiencing symptoms in the early mornings.

Symptoms throughout the day are much more severe now as well. My legs are starting to jerk uncontrollably while working on my computer, or in an office meeting (very embarrassing).

I have learned to keep my legs still when it's a burning/ticking sensation (the commonly reported "creep-crawly" feeling). But when my leg suddenly jerks forward with no warning, there's nothing I can do.

I'm afraid that my doctor will want to suspend my driving privileges, or put me on such a high dosage that I'll be nonfunctional. But I can't continue to function in my current situation, so it's off to specialist I go again.

My doctor didn't think I'd get any worse. He said he hadn't seen RLS as bad as he's seeing it in me, and that it usually gets better with age. That's contrary to everything I've read though, and certainly contrary to my own experiences.

Are your symptoms getting better or worse?

RLS and massage

I have very severe RLS. I take 8 mg a day of ReQuip... once upon a time a half mg worked. I also had Lyme Disease and now I have what they call Fibromyalgia and this condition worsens the RLS. I stumbled upon a remedy that really helps me. My children ages 6 and 10 walk on my back and legs and this calms down the jumpy legs and I usually doze off. Tigger

RLS and massage

I have kids the same ages... I'll give that a try, and I'm sure they'll have a blast along the way Cool

Thanks for posting this suggestion!

RLS and massage

I have had restless leg syndrome for over 20 years. Before they had a name for it. When they finally realized is was a "syndrome" I was put on Neurontin. My dosage was slowly increased until I was at my regular dosage of 300 mg 3 times a day. This had worked well for many many years. Within the past year it has stopped being effective. The RLS is now is my arms and legs and there is not a day that goes by that It does not bother me. It is much worse at night, as you can see, I usally cannot fall asleep until at least 2am and that is from shear exhaustion. I usally roam the house or lay on the coach watching stupid televeision just to forget until I can't keep my eyes open. Then I hurry to bed and hope to fall asleep before it starts all over again. My arms and legs jerk so severly that I know I keep my husband from a good nights sleep. On severe days, if I catch it early enough, I can take Topomax. The only promblem is if you don't get a full 8-9 hours of sleep, you are a real zombie. It is rare that I go to bed early enough to take this medicine. I had a spinal fusion in November and have been on medical leave so I have been able to sleep during the day when necessary. Right after my surgery I thought I had been cured of my RLS, but about a month later it came back with a vengence. You see I had been on Valium and I guess that helps the RLS, but you certainly can't live on that. But Monday I am to return to work, which means getting up at 4:45am. I am going insane wondering how I will do this when I can't sleep at night. I have a referral for a Neurologist but not until April. From everything I hear, I will be sleeping at work due to the Requip. Sorry I have gone on and on, this is the first time I am a newbie.  Embarassed

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