An online community for anyone living with restless legs, PLMD, sleep-related movement disorders, or other neurological conditions that affect movement in the arms and legs.
How you can get involved
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Membership is free. Join to share your story, ask questions, and connect with people who actually get it.
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Everyone here has a story worth telling. Your experience — what helped, what didn't, what you'd tell someone newly diagnosed — is what makes this community useful.
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Restless legs is misunderstood and rarely talked about. Tell someone who needs it, post it, or copy the link.
Groups
These groups are open to anyone. Visit any group, join the ones you want, and log in to reply or start your own discussion.
Restless legs
General discussion about restless legs syndrome.
Augmentation
When pramipexole, ropinirole, or rotigotine stopped working or made things worse. This is the group for augme…
Sleep
Sleep, insomnia, and getting through the night.
Periodic limb movement disorder
Periodic limb movement disorder (PLMD) — repetitive limb movements during sleep, and where it overlaps with R…
Alternative Treatments
Approaches and non-mainstream options outside standard medical care that members try for relief.
Home Remedies
What people try for restless legs and what works - or doesn't work - for them.
Share Your Story
Everyone here has a story worth telling — when your symptoms started, what has and hasn't helped, what you wo…
Coexisting Conditions
ADHD, bipolar, and other conditions people also manage, and how those medications can interact with RLS treat…
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If you're new here, welcome. A good first post: when did your symptoms start, and what's one thing you wish someone had told you early on? Even a short version…
Rick Interesting! I have never tried compression socks! Do they really work for you?
2d ago
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What's the strangest thing you've tried to get relief? :)
Rick That must have been miserable, Bridgett! How often do you typically get RLS symptoms and have you s…
2d ago
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I finally found a neurologist who also has RLS and has tried all the things I've tried. She totally "gets" me and that's been amazing! As I discussed my sympto…
Rick I should also add that I was told to wean off either the Pram or the Requip (Ropinerole) but wasn't…
4d ago
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Updated Algorithm for the Management of Restless Legs Syndrome Diagnose: chronic vs intermittent RLS (no need for polysomnography) Test Iron levels (& Rx if) C…
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Is RLS caused by dopamine deficiencies or vein problems? According to the Center for Vein Restoration in Maryland, vein problems can be a significant contribut…
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Lyrica seems to be my new RLS wonder drug. I started at 75MG three times a day and didn't notice much of a difference. After 2 weeks I contacted my neurologist…
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Baths or showers or hot tubs work wonders! The second my feet touch the water in a swirling hot tub or steamy bath my RLS symptoms go away. For showers I use h…
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Every time I tell someone I have RLS they ask me if I've checked my iron and if I'm taking magnesium. I groan inside but smile and assure them I've tried it al…
